Alex is feeling much, much better since the TPN started on Thursday! He is catching up on some much-needed sleep that he has missed out on with all of his recent tummy upsets. His weight has been down and going back up since his doctor's appointment on Tuesday. He looks better and better with every drip of the IV. We are still working on "ramping up" the TPN so that it runs closer to 12 hours vs. 24 hours per bag. Then it can run throughout the night and he can hook up to it at night and be "free" during the day (just like when he was on it in 2009).
A good majority of Alex's recent records along with a timeline of his history since diagnosis have been sent to Mayo. His KC doctor also put in a call to the doctor at Mayo last week. Hopefully we will hear something from them early next week.
Thank you to all of you who have offered meals, prayers and just your kind supportive words. We are so blessed to have so many caring people in our lives!
More to come...and hopefully from home!
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