We are surrounded by the absolute best professionals in more fields than we even knew existed! Who knew there was a team of people solely dedicated to "intestinal rehabilitation"? We will see them tomorrow....
Today Alex was seen by the colorectal surgeons (about 5 of them), gastroenterologists (2 of them in addition to the one we saw on Tuesday), a "TPN" team of medical nutritionists (4 of them), social workers (2), infectious disease docs (3), several radiologists to place the central line or "hickman, and a dietitian who works closely with patients with GI disease. Alex currently has a team of each discipline working on his case rather than a variety of individuals. The colorectal surgeons, GI docs, and nutritional therapists are all in the same clinic (digestive disease institute) and will team/staff on Alex all together. That means that all the doctors in the clinic will review Alex's case and together will come up with a treatment plan. It was emphasized that although Dr. Geisler is our primary point of contact, Alex is not "Dr. Geisler's" patient, but the "Cleveland Clinic's" patient and more specifically, a patient of the entire team at the Digestive Disease Institute. The hospital itself is staffed with excellent people. Everyone you see is extremely helpful (mostly because I'm usually wandering around lost), the nursing staff is so nice and attentive.
1 comment:
So glad you got so many answers and that the team is right on top of a plan for Alex! You're right - that place rocks! When they got Kevin cycled for his TPN to be 8 hrs, he was able to have it in a backpack CAD programmed, and on a battery (if needed). He was able to be pretty mobile with it, and after the home health care nurses handed it over to us, he was on top of the world because he was finally in control! He was on TPN about 6 months (May thru Oct)and only once did we have any issues we had to call about. All this was done with a PICC line, so we're happy he has a port which will be a lot asier to maintain for you guys too. We'll be keeping you in our thoughts and hearts. Take care of yourself, too, GEna!
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