Incision

FYI...Alex's incision has healed so well over the last week that Dr. Graham (KC surgeon) wanted to give him another couple of weeks before thinking about opening any areas up! He'll continue with antibiotics for a week and we will go back to see him in two weeks. He may still need to open some spots up, but the doc wanted to "give it a good go" before we do :). We also met with a wonderful stoma nurse named Becky on Monday. She was extremely nice and will be a good contact if we have any issues come up as well as just for routine follow up. Some of the "proud flesh" that was previously cauterized is back (or just didn't heal from the last time), so Dr. Graham and/or Becky may burn that off again at our next appointment(s). We have one more appointment tomorrow with the KC GI's nurse practicitoner to update them on everything/inform them about current medication changes. He is no longer on the Remicaid infusions every 7 weeks or any other oral meds at all besides his antibiotics for his incision! That's a big change from 8-10 pills a day, nightly TPN, and 7 wk infusions....ah...freedom :). When we follow up with Dr. Shen (Cleveland GI doc) around September we will learn more about it that will change or not.

Thanks for your continued prayers! I wish all of you could come for a big celebration to see in person how much energy, strength and color he has now! He says he feels better than he has in a very, very long time. Right now he has spurts of energy, but still wears out pretty quickly. However, those spurts get longer and more frequent every day!

Love to you all...